Mission

The Organic Acidemia Association is a volunteer non-profit organization whose mission is to empower families and health care professionals with knowledge in organic acidemia metabolic disorders. We support early intervention through expanded newborn screening, solicit contributions and distribute funding that supports research toward improved treatment and eventual cures in the areas of Organic Acid disorders.

Programs

We sponsor a national conference every two years. We publish a newsletter three times a year, for a suggested donation of $25 per year for domestic membership and $35 for international. We also have a roster of families for $5 additional. We host an internet listserv and website. We advocate newborn screening and support research efforts.